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We Want to Hear From You!

Share your story with the FAVA community.  


You have a story worth telling.  We would love to feature you in our occasional communications to our Project FAVA community, as we are certain you would motivate and inspire other FAVA patients and their loved ones.  Your story will also provide comfort to others in knowing that they are not alone in their struggles.  

Perhaps you would like to share what it is like on a daily basis to live with FAVA.  Perhaps you would like to share your roller coaster ride in seeking a diagnosis.  Perhaps you would like to share your experience with treatments.   


Simply tell us what you are comfortable sharing.  No entry is too short; no story is too insignificant.  

To have your story featured, please submit it by completing the form below:

Choose One:

Photo courtesy of Megan Menegay on Unsplash

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