2022 Million Dollar Bike Ride
When you have a fibro-adipose vascular anomaly (FAVA), you must live each and every day in chronic and severe pain. It is physically debilitating and mentally and emotionally exhausting. No cure exists, and there are very limited treatment options.
But YOU have an option to make a difference…You can support Team FAVA in the 2022 Million Dollar Bike Ride, hosted by the Penn Medicine Orphan Disease Center on Saturday, June 11, 2022. In eight years, the MDBR’s 30+ teams have raised over $14 million to fund rare disease research for the diseases they represent.
Team FAVA participants will ride, run, or walk - in-person or virtually - to improve the lives of everyone with FAVA. By donating to Team FAVA, you will help to advance research, educate, promote awareness, and increase FAVA resources. In fact, your gift will allow us to fund this exciting, cutting edge research:
The FAVA Molecular Sequencing Project
Through this project we aim to identify molecular alterations that define FAVA through use of a gene panel that evaluates mutations in 447 cancer genes. We anticipate that this will yield useful information that can be directly translated to clinical care and expand our understanding of FAVA and treatment options.
Every dollar raised goes directly to Project FAVA and gets us one step closer to funding the FAVA Molecular Sequencing Project, as well as developing education and awareness campaigns and supporting other vital projects.
Please know that no amount is too small. Your gift is truly appreciated.