Registry for COVID-19 in the Vascular Anomaly Population
If you have a vascular anomaly and contract COVID-19, please ask your doctor to complete the brief questionnaire below.
Surveillance Epidemiology of Coronavirus (COVID-19) Under Research Exclusion for Vascular Anomalies
Researchers need information on COVID-19 and vascular anomalies.
The SECURE-VA registry is a collaborative worldwide registry for healthcare providers to report COVID-19 in vascular anomaly patients. We hope to quickly characterize the impact of COVID-19 on people with vascular anomalies.
The study is anonymous and meets exemption criteria under federal regulations. Complete information on security and online collection can be found here.
If you have a vascular anomaly and you contract COVID-19, please provide the link below to your doctor. The form is quick to complete:
Patient registries provide researchers with the opportunity to analyze anonymous data that is generated and collected over a specific time. The true analytical value of registries can only be achieved when sufficient numbers of participants provide access to their data.
COVID-19 Information Sheet for Individuals with Complex Vascular Anomalies
The vascular anomalies community advocates have jointly collaborated with our medical advisors to develop an Information Sheet re: COVID-19 as it relates to our population.
Please remember this is for general information purposes only. It is not intended to be a substitute for professional medical advice, diagnosis or treatment. Specific situations might cause a variance in response, and if you are not sure, always seek the advice of your physician or other health care provider as they are the most familiar with your situation.
Video Q&A on COVID-19 and Vascular Anomalies
On Friday, April 3, 2020, four of the top vascular anomaly specialists from leading vascular anomaly clinics in the United States discussed and answered questions re: COVID-19 as it relates to complex vascular anomalies. The panel included:
Dr. Denise Adams, Boston Children's Hospital
Dr. Craig Johnson, Nemours Children's Hospital
Dr. Megha Tollefoson, Mayo Clinic Rochester
Dr. Belinda Dickey, Boston Children's Hospital
Click on the link below to watch the online session.
This content was created for general informational and convenience purposes only. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking advice because of something you have read on this website.
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