Looking for a Medical Provider

If you have been diagnosed with a fibro adipose vascular anomaly and are seeking a healthcare provider to confirm the diagnosis or explore treatment options, the following facilities either currently or previously have cared for FAVA patients, are otherwise familiar with the disorder, or have an interdisciplinary vascular anomaly team.  Project FAVA does not endorse any particular physician, clinic, or interdisciplinary team, nor do we guarantee satisfaction with their services.

 

 

United States – Northeast:

  • Vascular Anomalies Center at Boston Children’s Hospital in Boston, MA

This facility offers a service, through which you can submit your medical records and other information for review at their weekly physician team conference.  Thereafter, they provide you with a diagnosis and recommended treatment options, including a referral to a medical facility in your area.  They review cases from around the world and provide this service for free (with the exception of a pathology slide review fee).  This facility also has an interdisciplinary pain clinic for children and adults.  The VAC at Boston Children's Hospital has treated many FAVA patients.    

 

  • Vascular Anomalies Center at Johns Hopkins Medicine in Baltimore, MD

  • Vascular Anomalies Program at Children's Hospital of Philadelphia in Philadelphia, PA

 

United States - Southeast:

  • Vascular Anomaly Program at Nemours Children’s Hospital in Orlando, FL

  • Vascular Anomaly Program at Nemours Children’s Specialty Care/Wolfson’s Children’s Hospital in Jacksonville, FL

  • Children's Healthcare of Atlanta Vascular Anomalies Clinic in Atlanta, GA

 

United States – Midwest:

 

  • Vascular Malformation Specialty Clinic at the Mayo Clinic Gonda Vascular Center / Children’s Center in Rochester, Minnesota     

 

This facility evaluates and treats both adults and children.

 

  • Vascular Lesion Clinic at St. Louis Children’s Hospital in St. Louis, MI  

 

  • Hemangioma and Vascular Malformation Center at Cincinnati Children’s Hospital in Cincinnati, OH

 

  • Birthmarks and Vascular Anomalies Program at Children’s Hospital of Wisconsin in Milwaukee, WI

 

United States – Rocky Mountain Region:

 

  • Vascular Anomalies Center at Intermountain Primary Children’s Hospital in Salt Lake City, Utah  

United States - South-Central:

  • Vascular Anomalies Program at Children’s Memorial Hermann Hospital in Houston, Texas

 

United States - West Coast:

 

  • Vascular Anomalies Clinic at Lucille Packard Children’s Hospital Stanford in Palo Alto, CA

  • University of California at San Francisco (UCSF) Birthmarks and Vascular Anomalies Center at Benioff Children's Hospital in San Francisco, CA

 

  • Vascular Anomalies Program at Seattle Children’s Hospital in Seattle, WA

 

Europe:

 

  • Birthmark Unit at Great Ormond Street Hospital for Children in London, England 

  • The Center for Vascular Anomalies at the Cliniques Universitaires Saint-Luc in Brussels, Belgian 

  • Il Centro ad Alta Specializzazione per la Diagnosi e la Cura delle Anomalie Vascolari nell’Infanzia all Ospedale dei Bambini 'Vittore Buzzi' in Milan, Italy

Australia:

  • Sydney Children's Hospitals Network in Westmead, New South Wales

  • Royal Children's Hospital in Melbourne, Australia

Other Locations Worldwide:

  • The International Society for the Study of Vascular Anomalies (ISSVA) is an organization whose members are physicians and scientists with experience and/or publications in the area of vascular anomalies.  If you are searching for a medical provider in your area, you can perform a geographic location search on ISSVA's website at http://www.issva.org to locate its members worldwide.     

Reference to any particular medical facility herein does not constitute or imply its

endorsement, recommendation, or favoring by Project FAVA.

This content was created for general informational and convenience purposes only. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking advice because of something you have read on this website.

While Project FAVA strives to make the information on this website as timely and accurate as possible, we make no claims, promises, or guarantees about the accuracy, completeness, or adequacy of the contents of this site and expressly disclaim liability for errors and omissions in the content of this site.  No warranty of any kind, implied, expressed, or statutory, is given with respect to the contents of this website or its links to other Internet sources.  

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